SUPPORT US
We can GROW the CDG family
As parents of children with CDG, we can support each other by sharing our experiences, both with the medical system in the UK and simply in caring for our children as best we can.
How can I donate to CDG UK?
Go to our JustGiving page to donate to CDG UK.
Social media
We have a Facebook group for UK families.
Please get in touch if you would like to sign up to the newsletter or join the Facebook group.
Join Our Community
Register with our charity and join our patient database today to take advantage of the benefits such as:
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Eligibility to apply for our family grant
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Being the first to hear about the latest CDG news, including our family days, ‘Meet the CDG Experts’ events, new clinical trials, the latest in CDG research and more!
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Receive a new member pack including a free CDG-UK pen.
The purpose of this form is:
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To collect information on the increasing number of CDG patients in the UK
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To assist with CDG UK’s communication with patients, their families and their doctors
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Using the information to make contact with medical professionals who are not fully aware of CDG so we can spread awareness
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To ensure that when medical professionals are providing new families with the diagnosis, they can also provide up to date information about CDG and how to find support from charities such as ourselves.
The more information we have about all the families and patients living with CDG in the UK, the more we can support our community by providing tailored educational support, wellbeing support, new information about research and development etc.
All information provided will be kept secure and in line with GDPR. No information will be shared with third parties, including doctors or researchers, without your prior consent in writing.
The length of time needed to fill in the form is approximately 8 minutes.
Thank you for your support
Team CDG UK
