We can GROW the CDG family

As parents of children with CDG, we can support each other by sharing our experiences, both with the medical system in the UK and simply in caring for our children as best we can.

How can I donate to CDG UK?

Go to our JustGiving page to donate to CDG UK.

Girl painting and drawing
Girl in a wheelchair

Social media

We have a Facebook group for UK families.

Please get in touch if you would like to sign up to the newsletter or join the Facebook group.

Join Our Community

Be the first to hear about the latest CDG news, including our family days, our ‘Meet the CDG Experts’ events, new clinical trials, and the latest in CDG research.

Receive termly newsletters and get a free CDG-UK pen.