Who Are CDG UK?

CDG UK is the national charity supporting those affected by Congenital Disorders of Glycosylation (CDG). Partnered with the UK Genetic Disordered Partnership Network, we support UK patients and families.

So what is CDG? Click here to learn more.

Click here for our CORONAVIRUS UPDATE (Click here for FCDGC Guidance for Adult CDG Patients Receiving the COVID-19 Vaccine)

These diseases may be rare, but together we are becoming more informed every day.

Learn more about our community here

We are always learning more. Keep an eye on our news page to get the latest updates and feel connected.

Stay updated here

We also have a YouTube channel! You can see information from the latest Meet The Experts Day here

What Does CDG UK Do?

We attend international conferences to bring you the most up-to-date research and data.

See our Research pages for more info!

We organise events to bring families together, forming bonds of friendship and supporting our community.

Visit our Calendar

We have pooled our knowledge to give you FREE resources to support your family.

Visit our resources page

How Can I Support CDG UK?

Know someone whose life has been touched by CDG?

Contact us to learn how you can help or donate today!

You can now help to fund research by purchasing our charity merchandise!

Click here to view the store

Contact CDG UK


Send Us a Message

Copyright CDG UK – All rights reserved

Registered Charity Number 1191342.