Who We Are

CDG UK is the national charity supporting those affected by Congenital Disorders of Glycosylation (CDG). Partnered with the UK Genetic Disordered Partnership Network, we support patients and families in the UK, raising awareness and funds for this currently incurable group of disorders

So what is CDG? Click here to learn more.

These diseases may be rare, but together we are becoming more informed every day.

Learn more about our community here

We are always learning more. Keep an eye on our news page to get the latest updates and feel connected.

Stay updated here

What We Do

We attend international conferences to bring you the most up-to-date research and data.

See our Research pages for more info!

We organise events to bring families together, forming bonds of friendship and supporting our community.

Visit our Calendar

We have pooled our knowledge to give you FREE resources to support your family.

Visit our resources page

Add your support!

Know someone whose life has been touched by CDG?

Contact us to learn how you can help or donate today!

You can now help to fund research by purchasing our charity merchandise!

Click here to view the store

Get in Touch


Send Us a Message

Copyright CDG UK – All rights reserved

Registered Charity Number 1191342.