Donations to CDG UK go directly towards helping affected families and future research.
We raise money for further research into this group of currently untreatable diseases. At this time, there are very few researchers and doctors working in this area. With funding, we wish to change this, by collaborating with researchers and health professionals with one end goal: a cure for Congenital Disorders of Glycosylation.
Learn more about current research here
Donations also fund the information packs that we have supplied to 25 hospitals and the informative videos we produce. We provide information via our website and by newsletters and of course we organise our annual informal community event!
You can find out more about this event here.
We also create and sell merchandise to promote awareness, develop community and help fund further research.
Visit our shop here