On Friday 30th and Saturday 31st October CDG UK’s ‘Meet the Experts’ day is going ONLINE.
The day will be focusing on behaviour, communication and sleep.
Our patron, Dr Grunewald of Great Ormond Street Hospital, will be in attendance.
The zoom link will be posted here and on our Facebook page.
‘Meet the CDG Experts Day’ has too many experts!! So Friday 30th October 2020 is an additional day of talks as well as Saturday 31st. We have booked in another sleep doctor, a professional looking at movement disorders in CDG, and a talk about the results of a study of coping strategies in CDG affected families.