Join the CDG Community

Join the CDG Community

Congenital Disorders of Glycosylation (CDG)
Join with other families today for support and information

Congenital Disorders of Glycosylation (CDG)

CDG is the name of a group of extremely rare and complex genetic, metabolic diseases, which affects all parts of the body including the brain.

Learn more about CDG…

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Our CDG UK Community

CDG UK is the national charity supporting those affected by Congenital Disorders of Glycosylation (CDG). Partnered with the UK Genetic Disordered Partnership Network, we support UK patients and families.

Learn more about our Community

CDG UK is the national charity supporting those affected by congenital disorders of glycosylation (CDG)

  • We raise awareness of these extremely rare group of diseases and provide guidance and assistance to UK patients and their families
  • We were founded by the parents of affected families so we understand the difficulties others face in finding support
  • We work with the top specialists across the world to stay informed about CDG and promote research
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Join Our Community

Be the first to hear about the latest CDG news, including our family days, our ‘Meet the CDG Experts’ events, new clinical trials, and the latest in CDG research.

Receive termly newsletters and get a free CDG-UK pen.